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Bryan Boys for Hope

Tea, SD 57064 US
Team Fundraiser

Mike
Go Sawyer and Wesley!

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$25,700

Raised of $30,000

$0
$30,000

Story

Beau and I have been friends since kindergarten and have remained close all these years laters. Beau and his wife JeAnn have two awesome boys, Sawyer and Wesley, who live with muscular dystrophy. See http://Bryanboys.org Their form of the disease is very rare and their best chance for successful treatment is in a genetic therapy that is specifically designed for them.  Thank you for supporting Sawyer and Wesley and helping them as they raise money for the Bryan boys and Cure Rare Disease! My goal is to raise $20,000 from family and friends and then I will add $10,000 for a total of $30,000. Thanks again for your support. 

Who Are We?
We are The Bryans- Beau, JeanAnn, Sawyer (13) & Wesley (11) and we have called Tea, SD our home for the last 17 years. In 2019 both of our boys were diagnosed with Duchenne muscular dystrophy (DMD), a fatal muscle-wasting disease.

What is Duchenne Muscular Dystrophy (DMD)?
DMD is the most common, fatal genetic disorder diagnosed in childhood affecting 1 in every 3,500 male births. Boys with DMD lose muscle throughout their life, typically lose the ability to walk around age 10, and do not survive their mid-twenties. Rate of progression varies for each individual.

Is There A Cure?
With over 3,000 possible separate mutations in the dystrophin gene there is no cure-all. Our boys have an ultra-rare duplication within their gene, interrupting their body’s ability to produce the protein needed to maintain and support healthy muscle. The best hope for our boys is to receive a treatment via a therapy developed with their mutation in mind.

Who Are Cure Rare Disease (CRD)?
CRD is a non-profit biotech company based out of Woodbridge, CT that is making history by accelerating the pathway to life-saving gene therapies for people with rare neuromuscular diseases, who need them now. CRD and its collaborators are harnessing CRISPR technology to edit and correct mutated DNA to restore proper function to the dystrophin gene.

CRD and the Bryan Boys
We teamed up with CRD in 2020, and since then, significant progress has been made on the development of Sawyer and Wesley’s treatment. A team of scientists have created a therapeutic for their mutation that is proving to be successful, and manufacturing is just around the corner!

How You Can Help
Manufacturing and dosing of the treatment takes time and money. It’s estimated that the treatment will cost $2.2 million dollars from start to finish, so raising funds is essential to continue this life-saving work. Please consider giving to the Bryan Boys and together we can give them a chance at a long, happy, and healthy life.

Top Donors

$25,700 Raised By 53 Donors

$10,000 on behalf of Michael Wilding
$5,000 from Anonymous
$1,000 from Anonymous
$1,000 from Anonymous
$1,000 on behalf of Penny Wilding
$500 from Anonymous
$500 on behalf of Mike Wilding
$500 on behalf of Peter Daniels
$250 on behalf of James Shetler
$250 on behalf of Jim and Terri Strickland
$250 on behalf of Joelle Steward
$250 on behalf of John Mayhew
$250 on behalf of Jones Family
$250 on behalf of Justin and Maddy Frossard
$250 from Anonymous
$250 on behalf of Penny Wilding
$250 on behalf of Scott Bolton
$200 on behalf of Ajay Kumar
$200 on behalf of Ariel Son
$200 on behalf of Brian Dickman
$200 on behalf of Chris Frossard
$200 from Anonymous
$200 on behalf of Marie Durrant
$200 on behalf of NewGen Strategies and Solutions LLC
$200 from Anonymous
$200 on behalf of Will Shallenberger
$100 on behalf of Brian Tucker
$100 on behalf of Bryce Dalley
$100 on behalf of Carrie Bentley
$100 on behalf of James Owen
$100 on behalf of Janelle Frossard
$100 on behalf of Janice Bacon
$100 on behalf of Jayson Branch
$100 on behalf of Jessica Zahnow
$100 on behalf of Jon Olson
$100 on behalf of Kristi Christensen
$100 on behalf of Megan Capper
$100 on behalf of Rohini Ghosh
$100 on behalf of Ryan Flynn
$100 on behalf of Scott Ranzal
$100 on behalf of Sommer Daniels
$100 on behalf of Taylor Unknown
$100 on behalf of Tommy Pounds
$50 on behalf of Andrew Daniels
$50 on behalf of Candy Dietz
$50 on behalf of LeBarons
$50 on behalf of Phil Haines
$50 on behalf of Quel Unknown
$50 from Anonymous
$50 on behalf of Stefanie Johnson
$50 on behalf of Tyler Moore
$25 from Anonymous
$25 from Anonymous

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