The CURE is within reach!
Cure Rare Disease (CRD) is on track to develop a life-saving gene therapy for Sawyer and Wesley, and others like them. To make it possible, we need your help to raise...2.2 million.
$811,395
Raised of $2,200,000
Who Are We?
We are the Bryan family; Beau, JeanAnn, Sawyer, and Wesley, from Tea, SD. In 2019, both of our boys were diagnosed with Duchenne muscular dystrophy (DMD), a fatal muscle-wasting disease.
What is Duchenne Muscular Dystrophy (DMD)?
DMD is a devastating genetic disease that progressively destroys muscle, robbing children of their ability to walk, move, and eventually breathe. There is no cure, and many do not survive beyond early adulthood.
Is There A Cure?
Not yet. Our boys have an ultra-rare genetic mutation requiring a treatment developed specifically for them. Without treatment, their muscles will continue to deteriorate.
Who Is Cure Rare Disease (CRD)?
CRD is a nonprofit biotech organization developing groundbreaking gene therapies; utilizing CRISPR, for rare, life-threatening diseases, offering hope to families like ours.
What is CRISPR?
CRISPR is a revolutionary technology that gives scientists the ability to edit faulty DNA. For our boys, it offers hope of correcting the genetic mistake causing their muscles to deteriorate. This treatment could help stop Duchenne from stealing more of their strength, mobility, and future.
CRD and the Bryan Boys
Since 2020, CRD has been developing a personalized gene therapy for Sawyer and Wesley. Significant progress has been made, but time is running out as their muscles continue to weaken.
How You Can Help
Developing and delivering this potentially life-saving treatment requires millions of dollars. Every donation brings our boys closer to treatment before it's too late.
Time is muscle. Time is running out. Please help us save our boys.
Teams
Top Team Fundraisers
View AllBRYAN BOYS BENEFIT
$100,325.00 raised of $50,000.00
Battle for the Bryans
$44,201.69 raised of $50,000.00
Beau & JeanAnn
$39,525.00 raised of $20,000.00
'Tis the Season
$38,075.00 raised of $2,200,000.00
Blindert Insurance Team
$30,000.00 raised of $30,000.00
Support this campaign!
Donate NowAny questions? Contact us!
Contact us:
4 Research Drive
Woodbrige, CT 06525
beaubryan23@gmail.com
Mail checks to:
Cure Rare Disease
Attn: Bryan Boys
4 Research Drive
Woodbridge, CT 06525
Venmo:
@JeanAnn-Bryan
Last four: 9193